Addie is seven years old and has been battling Juvenile Dermatomyositis. And now I can hear many of you saying to yourselves "I've never hear of that before." And I will be honest, I had never hear of it either until I started Gracie's Gowns. Her mother gave me a fabulous link for it, so that is posted at the bottom for each of you to check out.
Luckily there aren't too many secondary conditions that resort from it, but Addie, like most kids that are diagnosed with Juvenile Dermatomyositis, they have super weak immune systems and are hospitalized frequently for the things that most of us would just take a sick day and move on from...or just work through.
Addie has gone through a LOT and that isn't a joke once you see this treatment list below:
42 Blood draws
22 trips to the University of Minnesota
10 Solu-Medrol Infusion's
GI Swallowing X-Ray
3 Hospitalizations due to Pneumonia
That being said these treatments will continue and very in intensity, frequency and duration based on how her condition progresses. She is still in the active stage of her disease which means almost anything is fair game at this point.
For her mom each day is essentially unknown ~ it is nerve racking not knowing what is going to happen, but she takes much joy in watching Addie grow and develop into a beautiful girl and helping spread awareness for Addie and other children with Juvenile Dermatomyositis.
And here she is...
To Learn more about Juvenile Dermatomyositis go to the Following Site: