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Busy Buddy by Bee Brave

8/18/2013

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This amazing tray with a removable pillow that also becomes an amazing storage keeper is called a Busy Buddy - the amazing mother, daughter team behind it is called Bee Brave!

Our son David, was a recipient of a Busy Buddy - he is autistic (you can read back through the blogs and find his full story) and we spend two hours in the car every trip to therapy, every appointment, every specialist and every testing...which this summer was three days a week...for him, it is boring and frankly he hates it!

I cannot tell you how much he LOVES this - he can use it at home on his lap to color (we don't have much table space, and he can take it away from the girls), he uses it in the car, he can hide his most treasured possessions inside the pouch for the pillow (it has a zipper)...and well it worked great for mommy when I was laid up in bed and I was able to write out the new requests for gowns even.


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David is pretty picky about what he likes - what child isn't right?! I had just made him a special little bean bag seat/ottoman thing...lol. And this was the fabric he picked out for it. The amazing part of his Busy Buddy, was I was able to send in this fabric and her mother made the pillow with it! David was so excited to see his "moo cows," "piggie" and tractor on the fabric.


Melissa went one step farther and matched the painting on the tray to the fabric as well! Once again - he was in HEAVEN! It was so great to see his face light up when it arrived in the mail and it was perfect timing as we had therapy the next day! But he wanted to take it outside to play with his trucks in the sandbox instead...lol.

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So we compromised - he is David with his Busy Buddy!

He was allowed to take it outside with him, but it had to stay with mommy, I wasn't about to have sand start coming out the zipper pocket...lol.



He doesn't always smile, but he wanted to say "mooooo" as his picture was being taken. The boy loves cows, what can I say? He wants to be a cowboy when he grows up.


When I sent in David's fabric for his Busy Buddy we also went a couple steps farther and created a wonderful bond and work relationship on the Gracie's Gowns end with Bee Brave.

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We sent all this amazing fabric over to Bee Brave to help make the pillows for other children, teens and adults that end up being on their sponsorship list!


Of course, it is mostly all scraps from gowns that have been made for children by Gracie's Gowns. Some of our gowns we have lots left over, and this is the case with these fabrics, but we also sent lots of smaller pieces to use as well for their mini stress relievers!


We filled up a diaper box of fabric and mailed it out to Melissa and her mom and something even more amazing is stemming from this too!

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We are participating in CureFest 2013 in Washington D.C. - it is an event sponsored by The Truth 365 to bring awareness and support for Pediatric Cancer.


The event is on September 1st, 2013 and all of the participating organizations, work with children who have cancer, fund pediatric cancer research, promote awareness, etc.


Bee Brave - is sending us 50 mini stress relievers for our goodie bags to distribute throughout the time of the event! We wanted to help promote other organizations that are small like us, but work with children who have cancer, and just chronically ill children as well and let them not only put informational materials in our bags, but include a little item too!


Melissa sent me this picture of some of the ones heading our way here soon! All I can think of when I see this is the precious kiddos that received gowns from the same fabrics and it makes me tear up, knowing they have inspired something so amazing in my own heart and really and truly are the heartbeat that keeps Gracie's Gowns running!

If your organization isn't attending CureFest and would like to include an item and informational materials in our goodie bags, we are putting together 50 bags. The items need to be at my house no later than the 29th of August so I can get them put in the bags.


Direct sales companies are allowed to include an item, but I am only taking one representative per company - and you must include a sample item with your information. Please contact me BEFORE sending anything, just to make sure I don't have another representative already - and that I need to keep my eye out for a package - same with any organization.
To learn more about Bee Brave you can visit their 
Facebook Page at (stop by and send them some love, Gracie's Gowns style of course):
https://www.facebook.com/beebrave2013



And their website is:
http://www.beebrave.org

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Gracie's Gowns Meets: Keegan

12/29/2012

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This is Keegan ~ a wonderful little guy that is battling High Risk ALL. I am at a loss for the exact words for the acronym, but it is a form of Leukemia...and one that is frequently diagnosed.


 Keegan is three years old and even though he is in remission, he will have daily chemo until November of 2014!! That is a long road ahead, but one that he is
walking so bravely and confidently ~ look at that smile!


He also have Neuropathy, which is nerve damage to the legs and feet and is unable to wear shoes because he has very painful warts on his feet as well. Keegan is also dealing with a loss of appetite and weakened lungs. 


During this battle with Leukemia Keegan has had 2 port placements, many spinal taps and bone marrow biopsies and gets blood draws every two weeks...and this is just some of what he has been through and what he will continue to go through. Every month he has a stronger rough of chemo via IV in addition to the spinal tap and spinal chemo.

To follow and support Keegan you can visit the following Facebook Page:
www.facebook.com/keeganboy

To Learn More About Acute Lymphoblastic Leukemia YOu Can Visit the Following Resource:
http://www.mayoclinic.com/health/acute-lymphocytic-leukemia/DS00558


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Beyond Leukemia

8/5/2012

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Leukemia isn't one of the topics I am terribly knowledgeable on, but I can tell you second to congenital heart defects, it is the second highest condition/disease that a child is diagnosed with and a gown is being made for.


There are so many types of Leukemia, treatments, trials and successes. We had a daughter of a member in our church diagnosed with Leukemia (a very specific diagnosis, but I do not remember the name ~ a rarer one I do know) and she traveled from her home in Northern Virginia to Duke for possible treatment options and late last year after an extremely valiant fight, she went to be with the Lord.


That was my first up front exposure to Leukemia and ofcourse one as a mother that I don't want to think about (she left behind three wonderful boys, two very young and the oldest is 11 I believe). It was a shock for me, because I had read so many success stories online and in the paper, but realized when I thought about it more, the successes were almost always children. Not sure what part that has to play in the grand scheme of things, but it is a very hopeful thought.


The request for Gabriel's gown was placed within a week of his diagnosis, talk about being in the right place at the right time. So many emotions must have been going through his parents and his own mind...and here we were to provide that little ray of sunshine and hope that all things will work out.


His mother posted this WONDERFUL photo of Gabriel to our Facebook page and I will be honest, it made MY day so much better!! The smile of his face, despite the hospital admission, the Leukemia, the stress...he is still smiling! And what a great smile he has.


Thank you so much for sharing with us, and while I don't have a Facebook/caringbridge/etc page to share with anyone who made read this and want to contact the family, pray for them, keep up to date on Gabriel, where his mother posted this photo on Facebook, you can at least contact her that way (go to the photos of Gracie's Gowns and you will see it there).


Gabriel ~ thank you SO MUCH for making my day brighter! May God Bless you and your family! Keep your chin up and that wonderful smile on your face!


Jessica
Gracie's Gowns

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