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Operation NICU Surprise - Tripler Army Medical Center (Hawaii)

5/20/2014

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Earlier in the month we asked everyone on our Facebook page to nominate a NICU and/or Hematology/Oncology unit or clinic that was there favorite to receive a special surprise from Gracie's Gowns!

We are choosing two NICUs and two Hematology/Oncology units from those nominated to receive a special box from us. The first NICU was chosen - and it is going to Tripler Army Medical Center's NICU in Honolulu, Hawaii! Jennifer nominated the hospital after her son Colton (who is also a Gracie's Gowns recipient) was born and cared for by the NICU staff. She was awesome enough to include a story of his stay and just how wonderful the staff was - and some sweet photos to share as well!
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Here is her precious Colton when he was born and cared for back in August of 2011. She includes the following about the hospital and staff at Tripler Army Medical Center's NICU.


"Our son was in the NICU for 12 days in August 2011. Our pregnancy with my son was very rough. Not many doctors believed he would make it or he wouldn't live long after brith. The NICU was just very amazing with him. They did everything they could to help him and it was so nice to finally have someone believe in him. They felt like family to us when we were there. And they just went above and beyond for my son. The NICU staff was just amazing! My son had an MRI when he was 1 1/2 months old and they let my son back into the NICU to be observed overnight bc they knew I was very uncomfortable with him going to the PICU with a bunch of sick kids. They were very understanding and cared very much for my son! And being a Military Hospital a lot of kids are in there with just one parent and no other family members to help them out during a stressful time in life and they could use a little a cute hospital gown!"
The photo above on the left is Colton in his gown from us back in September of last year (2013) and the photo on the right is him today at 2.5 years old! Look how much he has grown and how precious that smile is!! Way to go Colton - you've come so far and we have no doubt it was because of the fabulous start and care you have received since coming into this world! 
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So what's the surprise we're sending to Tripler Army Medical Center's NICU?

Well, we are sending them thirty NICU smocks to be distributed to the babies they care for! We know it doesn't remotely even make a dent into the 1,100 babies they serve annually, but at least there will be thirty styling babies this year!

These will be sent out this week to Hawaii and we hope they are received with much love and bring many smiles to the families that receive on of the gowns!
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Thank you Jennifer for nominating Triple Army Medical Center's NICU and sharing Colton's NICU story with us and allowing us to share it with all that may read our posting!

Thank you as well to Kim for sewing pretty much every single one of these thirty gowns going to the NICU (after we drew the name - we learned Kim's granddaughter was born at this hospital as well, but fortunately did not need to be admitted to the NICU). 
Stay tuned for our second NICU to be drawn once we have the items completed - but also for our Hematology and Oncology units/clinics to be chosen!

Lots of Gracie's Gowns cuteness to come!
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End of Spring Raffle Winners

5/6/2014

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Our spring raffle ended last week and we rounded out the items given away with several great prizes!
All prizes have been mailed out and should be received very shortly if they haven't already arrived - there are a few I still have to deliver in person, but that will be taken care of this week as well.
I would like to say thank you so much once again to everyone who helped out with this fundraiser and while we didn't reach our goal in ticket sales, we still broke even with our expenses and have a great time seeing everyone get excited about the items they won!
We hope everyone enjoys their new goodies and we look forward to doing our summer charity raffle late July or early August depending on when I can finish getting everything sewn up and completed.
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Our twenty-second winner was Brenda Hill - her items were from Scentsy!

The items for this day in the raffle were donated by Christi Smith - a Scentsy consultant that is also the mother of a child we have made a gown for. 

This cute bunny is a charity item by Scentsy for March of Dimes - we'd love to be able to get a few more of these to include with our NICU gown donations to hospitals.

Christi's business website is:
http://csmithrn04.scentsy.us
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Our twenty-third winner was Karen Valdez - her items were from The Pampered Chef!

The items for this day in the raffle were donated by Audra Smith - a Pampered Chef consultant that is close friends with a gown recipient's family.

Audra's business website is:
www.pamperedchef.biz/audra
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Our twenty-fifth winner was Brianna Horney - her items were from The Pampered Chef!

The items for this day in the raffle were sponsored by Marie Snyder - a local Pampered Chef consultant to Gracie's Gowns.

You can find Marie's business page on Facebook at:
https://www.facebook.com/PampChefLady

And her business website is:
www.pamperedchef.biz/foodisfun
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Our twenty-ninth winner was Megan Jensen - her items were from The Pampered Chef!

The items for this day in the raffle were sponsored by Marie Snyder - a local Pampered Chef consultant to Gracie's Gowns.

You can find Marie's business page on Facebook at:
https://www.facebook.com/PampChefLady

And her business website is:
www.pamperedchef.biz/foodisfun
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And there you have it - the last of our raffle winners!!
CONGRATULATIONS to all our winners and once again thank you so much to everyone who helped, donated an item, purchased a ticket and just spread the word about our raffle!
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Week Three of Winners Spring Raffle

4/22/2014

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We are entering the last week and some of our spring raffle now!
It has been so much fun drawing winners for the prizes given in this raffle and I hope everyone is loving their new goodies. Here are the winners from last year.
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Our eighteen winner was Vicki Quick - her items were from Scentsy!

The items for this day in the raffle were sponsored by Karen Day Hill!

Karen's business website is:
http://karendayhill.scentsy.us
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Our nineteenth winner was Susan Casey-Ellis - her items were from The Pampered Chef!

The items for this day in the raffle were donated by Audra Smith - a Pampered Chef consultant that is close friends with a gown recipient's family.

Audra's business website is:
www.pamperedchef.biz/audra
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Our twenty-first winner was Irene Luck - her items were from The Pampered Chef!

The items for this day in the raffle were sponsored by Marie Snyder - a local Pampered Chef consultant to Gracie's Gowns.

You can find Marie's business page on Facebook at:
https://www.facebook.com/PampChefLady

And her business website is:
www.pamperedchef.biz/foodisfun


CONGRATULATIONS to EVERYONE!!!
And thank you to everyone who has helped with this raffle by purchasing a ticket, donating items, sharing our event and inviting your friends as well!
We still have some tickets for purchase for the last of our amazing raffle items! There's a deep covered baker from Pampered Chef, Scentsy bundles and more still to be given away!
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Precious Angel Bears - Eddie and Sofia

4/18/2014

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Remember back to last month when we made Lucy's bunny?

We decided this was a great idea and that we would continue to do such gowns for the children that gowns were requested for, but unfortunately passed away before their gown was able to be made and sent to them.

The first of the three I have been working on is going to the Livingston Family in memory and honor of their son Eddie who passed away from Neuroblastoma in 2013. 

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His nickname was "Superman" and his gown was actually requested by a mutual friend of the family and myself. Isn't he such a handsome little man? I bet he is an even more precious angel - flying around with his cape and all...having all kinds of fun like little boys should!

We purchased the superman fabric, but two days after having his fabric Eddie passed away, so the special bear below will be headed to his family in Florida.
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The second of the three is going to the Scott family in honor and memory of precious Sofia who passed away in March (on my little man's birthday actually) from complications with Spinal Muscular Atrophy Type I. 

Her gown was requested by a friend of the family, who also asked that we still send her gown to them as a keepsake. Once again, we decided to make an angel gown with a bear to be sent to them.
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And here is the beautiful princess Sofia.

Her angel bear and gown will be making it's way home this weekend as well. Her gown was completed (in her size), but wasn't able to be sent before we learned she had passed away.

So, we sized it down to fit the teddy bear, below is her angel bear. It didn't quite want to sit up on it's own - hence the kinda of squished look in the photo.
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Will be working on getting the third one done and posted - it is such an honor to make this tributes to the families we've received requests for and while we weren't able to provide their child with a gown to wear throughout their journey, at least we now have a way to honor their fight.

To the Livingston and Scott families - we are still praying for each of your every day...and while the loss of a child is beyond all words and the hurt will always still be there in many ways, we pray each day you find a little more peace, a little more comfort and a little more love from those surrounding you in prayer.

Much love and many blessings,
Gracie's Gowns
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A Little Break in Routine

4/15/2014

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Okay - so old picture, but had to use something with the sewing machine. I love sewing these hospital gowns, I love sewing them for your little ones and seeing their smiling faces and knowing how it can literally change a hospital experience from bad to at least tolerable. 

Sometimes though, I have to break the routine of making gowns and work on other projects, just to keep from crying over how many precious little ones are in need of such an item. It breaks my heart in so many pieces at times, that I have to sit back and remember how much of a blessing each child is, how they have changed the lives of those around them...how they fight, just to make it through another day and while yes, the odds are usually stacked against them, they inspire others to do such amazing things - like Gracie's Gowns and so many other organizations!
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One of the items that have been done and still being worked on were these squishy little monsters! We sold them over the course of a couple days in order to raise shipping funds for gowns.

I am happy to say they are almost all done and out in the mail (still have maybe 7 more in total to make I believe). Here is some of the ones that went out last week, as I didn't get pictures of the previous ones made to post. My apologies on that...they are too cute not to picture and post.

These guys come from leftover minky fabric that I have from making millions of blankets over the last few years I have been making for friends and family.
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One of the other items that get worked on in those little breaks are some bags for Beads of Courage - I love making these little bags from leftover pieces from gowns!

They are easy enough to make and still give that feeling of inspiration and fulfillment I suppose in knowing the fabric we use won't go to waste and can brighten the days of so many other children too.

This year we have 17 bags made so far to donate to Beads of Courage and will probably have close to 50 by the time the donation is ready to be made. We are hoping to be able to donate them to our local hospital with a Beads of Courage program. 
Lastly, whenever I really want to venture out into my sewing fun - I go back to making little items from leftover pieces of fabric and working through my own personal fabric stash and creating other items that we will be taking with us for our craft show in October - last year we raised $900 for Gracie's Gowns with items made from leftover pieces and whatever fabric I had on hand - this year we're hoping to meet and exceed that amount...especially with the Christmas Box Program coming up at that time of the year as well. Right now we've loaded the items into an etsy store (which will be put in vacation the Thursday before the show) to try and sell some of the items throughout the year with all the money being put into our shipping expenses. So here is the etsy mini with links in case you want to browse it!
With all that fun being said and shown - no worries, gowns are still being made, still being sent out and Gracie's Gowns is rolling right along like we always do. Sometimes just a little slower than normal, because we are in the process of moving and my health has gotten a little "interesting" for lack of a better word, but we are still upholding and maintaining our mission to provide every child we can a special hospital gown of their own to wear while in treatments, surgeries and hospital stays!

Much Love and Many Blessings,
Jessica
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First Week of Winners - Spring Raffle

4/8/2014

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Our first week of winners and a special drawing winner have already happened!! So exciting and the majority of these items have already been mailed out too - thanks to some extra running around we've had to do in our personal world and was able to swing by the post office on those trips too.
We're excited to start another week of winners - after I draw today's winner - we still have 22 awesome days of prizes left to give away and another special drawing prize if we can still 200 tickets in total (we're at 117 right now). Lots of great Pampered Chef and Scentsy items are being given away and you're not going to want to miss out on the upcoming prizes for sure!
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Our first winner was Debbie - her items were from The Pampered Chef!

The items for this day in the raffle were sponsored by Marie Snyder - a local Pampered Chef consultant to Gracie's Gowns.

You can find Marie's business page on Facebook at:
https://www.facebook.com/PampChefLady

And her business website is:
www.pamperedchef.biz/foodisfun
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Our third winner was Patricia - her items were from The Pampered Chef!

The items for this day in the raffle were donated by Audra Smith - a Pampered Chef consultant that is close friends with a gown recipient's family.

Audra's business website is:
www.pamperedchef.biz/audra
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Our fifth winner was Ellen - her items were from The Pampered Chef!

The items for this day in the raffle were sponsored by Marie Snyder - a local Pampered Chef consultant to Gracie's Gowns.

You can find Marie's business page on Facebook at:
https://www.facebook.com/PampChefLady

And her business website is:
www.pamperedchef.biz/foodisfun
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Our seventh winner was Becky - her items were from The Pampered Chef!

The items for this day in the raffle were donated by Audra Smith - a Pampered Chef consultant that is close friends with a gown recipient's family.

Audra's business website is:
www.pamperedchef.biz/audra
CONGRATULATIONS TO EVERYONE!!


To purchase your ticket(s) you can visit our website under the events tab - www.graciesgowns.org/events.html
and purchase them there using the Add to Cart button through PayPal.
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A Time to Remember - Two Years

3/25/2014

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This past weekend we celebrated our two year anniversary in making hospital gowns for children across the United States and around the globe. What a great accomplishment, what an amazing experience, what a blessing for my own life the past two years have been (even with the crazy times)...but we also took the time this year to celebrate the lives of the children we have made gowns for and remember those that have passed away over the past two years.
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Each child we made a gown for that traded in their super hero capes for angel wings had a lantern with their name, date of birth, date the became an angel, diagnosis and anything else the family, us, or the person who purchased the lantern in their memory wanted to say on it.

This year we released 45 lanterns - there were a few duplicates from where Gracie's Gowns had a lantern for the child and someone else wanted to purchase a lantern in memory as well, but overall there was one lantern per child. We had a few lanterns as well for children that we did not make a gown for, but were warriors as well - and we gladly added remembering their courage, strength and smiles to our ceremony.
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Due to some weather related issues, we started later, but lanterns went in the water around 8:00 p.m. and the final one went out about 10:00 p.m. It was a very cold night, but watching the lanterns float in the water, seeing their reflections and just how they illuminated the water was breath-taking. Even more so, it was very, very emotional for me. Too have a visual of the children that lose their lives battling illness was heart-breaking...to know that this is only the children our organization has personally worked with in two years was devastating. There are so many more children who pass away each day, week, month and year that if we lit a lantern for each of them - we'd have to worry about them catching themselves on fire...there wouldn't be enough water for them all to float.

Watching the candles go out was probably the most emotional part of the whole night.
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The lanterns - if the wind didn't blow them out - started to sink as they were wet. They are biodegradable, which is the point for them to get wet and sink/fall apart/etc. But as they did...you would see this light, barely above the water...like it was holding on unto the last second. Fighting until the very end to stay shining. They flickered, almost went out, flickered some more, got brighter and held on...and then once the water came closer, the flame disappeared without any warning. Just like our little warriors.

They fight until the very end, giving it 100% and then some - they have so many close calls and yet still manage to pull through and almost make a complete turn around and then...in a blink of an eye, they are gone.
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Here is all of the lanterns we released out in the water - a beautiful tribute and celebration of their life.

Over the next few months, I will be creating an angels/in memory of page here on our website. It is my hope to get each child that we know has become an angel and learn about the ones we do not already know, on that page with their parents permission and help.

This will become an annual event for Gracie's Gowns - and for those that may not be able to attend at night, it is in my plans to do a balloon release during the day and make that a family event as well.

To view all the photos and lanterns from the event - you can visit this link below:

Gracie's Gowns Two Year Anniversary Lantern Release
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Fabric with Lots of Love - Lilahroo's

3/12/2014

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I have the wonderful opportunity to help out another great organization with some fabric to continue their mission. This time it is for Lilahroo's! Monica makes these precious, cozy, comfy and just wonderful blankets for children fighting medical challenges.

Do we have one? No - but my, oh my, you can just see from her photos and stories of children that have received one just how comfy they are! As someone who has made blankets for years, these are great quality, with wonderful fabrics. Cozy flannel on top and super soft minky on the back...perfect blanket ingredients!
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Here is Autumn with her gown and Lilahroo while at her clinic appointment! Doesn't she look super cozy there?!

There website to learn more about what they do, who they are, how to support and even all the stories from families that have received a blanket from Lilahroo's is:

http://www.lilahroos.com/


They are also on Facebook at:

https://www.facebook.com/pages/Lilahroos/621064347914209
So since the kiddos and I are getting a lot closer to moving time and we've been holding onto some of these fabrics for a while now, without any requests to use them for, here are the cozy flannels we had to send Monica's way and even a minky fabric too:
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They will be on their way shortly - as in probably tomorrow's mail!!
Can't wait to see what little ones get wrapped up in a cozy blankie made from these fabrics.
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Lucy's Bunny for William

3/12/2014

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I know we posted about this on Facebook, but I just really felt like I wanted to write and post it on our blog as well - especially since we have followers here, that don't Facebook.

Every so often (and much more than I ever want to admit or think about), we have a little one that passes away before their gown is received. Sometimes even before we have started their gown request. While I know it is always a possibility, it is still the hardest part about operating Gracie's Gowns.
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Lucy is one of those precious little ones. I had just completed with sewing on her gown and the next day her mother Rinda messaged me through Facebook saying her precious little girl had passed away. She was born with hypoplastic left heart syndrome and the complications from her heart defect gave her a beautiful set of angel wings.

I asked her mother if she still wanted Lucy's gown as a keepsake and she said yes, but then I had another idea in my head and heart to make it a little more special - Lucy didn't just leave her parents behind, but also an older brother named William.
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It was agreed that my little idea was perfect for her brother William - he is three years old and is having a hard time understanding why he can't see his baby sister anymore...it was to put Lucy's gown on a special animal and send it to him. So whenever he misses Lucy, he can give this animal a hug and send a hug to her as well.

The search began for the right size animal and I found this fluffy bunny that her gown fit perfectly on.
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This precious bunny came from our local Build-A-Bear store in the Spotsylvania Towne Centre. I went there knowing their animals were a bit larger and in prayer I would find something perfect.


I got a huge surprise though while there - as the bunny was being stuffed by the manager, we were talking about what occasion it was for and I showed him Lucy's gown and how it was for her brother. He noticed the angel wings right off the bat and I told him she passed away at fifteen days old from a severe congenital heart defect. The manager then took the tag off of the bunny and donated it to her brother William.
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I even showed him the little heart snaps that we used on the back of the gown, while we were putting it together.

The manager refused and I mean refused to let me even remotely pay a dime for the bunny - and I couldn't have been more blessed to see this idea become a reality for William and Lucy's parents.

This precious bunny is making it's way to their home in Australia as I am writing this posting and I know it will be received with many, many hugs. 
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There she is - Lucy's Bunny.


As hard as it is to lose one of our little ones, period, it is so hard for me for them to pass away before we can get a gown to them. But now we have this amazing, heartfelt way to still provide a little something for their families to hold onto. It is a blessing to finally (after almost two years) have a way to remember these little ones as well and their brave fights, however long or short they may be. 
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Donation to the Little and Dependent

1/25/2014

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Eastern Tennessee Children's Hospital is one of the most amazing children's hospital in the country. Not only do they care for a variety of pediatric illnesses and needs, but they have a super special NICU. 

The reason their NICU is so special is because they are one of the hospitals that treat the highest number of drug-dependent newborns in the United States. And we aren't talking street or illegal drugs...these are prescription pain medications and most obtained under normal circumstance.

These babies are weaned off prescription medication, by being given doses of morphine until they are able to tolerate being completely off any kind of opiate. This process can take days and week to accomplish. The unit can hold 49 infants and over half of them are born with neonate abstinence syndrome (drug-dependent), these babies have to be watched around the clock for seizures and even worse, in case they stop breathing.
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When I was in college, this was a topic I was starting to write a research paper on...it is a personal subject as my youngest was born drug-dependent and not because I misused my pain medication, but because I was given excessive amounts of pain medication between all of our admission during pregnancy for pre-term labor and for the amount of pain I was in throughout the entire pregnancy because of the amount of scar tissue I had and two pregnancies very close together and severe anemia issues as well. 

Only problem was, when she was born, we didn't know what was the cause of all the problems we had in the first two months of her life, until I happened to read a forum on drug-dependent babies and all the pieces fell into place. It was scary.
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So when Ellen from Socks 4 Surgery posted the articles published in 2013 about Eastern Tennessee Children's Hospital and what their NICU was doing - we decided that some extra comfort needed to be sent to these precious little ones as well.

Ellen sent out socks and hair bows and in her awesomeness asked if we had any gowns that we could send their way as well. I had to wait until I got back to the house and went through what we already had sewn NICU Smock wise and put together a box that we will be sending out the the hospital this Monday.
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So in total we have twenty-eight gowns headed to the hospital's volunteer services and some of our brochures to be used throughout the hospital for other children that may want a gown of their own as well.

We will keep praying for the hospital's staff and volunteers that are working with and caring for these precious babies and their families. We pray for the babies and their families as well through this rocky start to their journey and lives. 

We hope these gowns find each little doing the best they can and provide them with a little extra comfort.
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Clicking on the picture above will take you to a brochure (PDF Format) the hospital has created on Drug Use during Pregnancy and about Neonatal Abstinence Syndrome.
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