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A Flitter, A Flutter, A Butterfly Bead

8/27/2015

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Over the last three years, we have participated and even donated items or supplies to other organizations that work with the same type of families, and in many cases, the exact same families we work with. It is always a blessing to be able to share my time, talents and energy to support the families we serve throughout a variety of way.

One of these organizations is Beads of Courage, which we have wrote about quite a few times here, but we have added something new this year in working with families who also participate in this and other similar arts in medicine programs offered by different organizations.

We had a butterfly bead created, that represents our organization and can be added to any existing bead strands a child already has through the program they participate in. These beads are for children that have requested and/or received a gown from Gracie's Gowns. Children who have passed away, but a gown was requested and/or received prior to their passing also qualify for this program.

The program is at NO COST to our families, whatsoever, however, anyone that is able to help towards the bead cost and shipping expenses is always welcome to do so. We have had other families and even private donors help support this program as well with the first set of fifty beads that arrived in July. 

Each bead is handmade, they are glass lampwork beads and are made by order. The colors in the photo above are the colors available: pink, blue, purple, green, and a multi-color one as well. They are absolutely GORGEOUS in person, I cannot take a single picture that does them justice.

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The other item we have offered with this program, is how we got started helping these types of arts in medicine programs - a bead bag. Some families that participate in their respected programs are not provided with a bag in which to hold their strands and beads in. Many of times because the hospital is in short supply of them, or they just don't use something like that. So we have also asked whether or not a bag for the child's beads is needed. They are very simple drawstring bags, but they are so much better than using a ziploc sandwich bag or something along those lines.

We have some labels from Beads of Courage that we put on the bags for those that participate in their program, but need a bag to keep their bead strands in. For those that participate in other programs, we just put our gown label on the bag.


Our beads are not directly associated through any of the programs listed on the request form, meaning that you cannot get our bead through their program, it has to be requested through Gracie's Gowns using our request form. We order the beads when we have at least fifty requests, it is more beneficial shipping wise to us when they are ordered in larger quantities


The link to our form is located through this link: 
https://docs.google.com/a/graciesgowns.org/forms/d/1Ctc8c1rLVaXCWKpMy1C-EK85rJqi5vAex15JOxRxToY/viewform


We look forward to adding your little one to our Butterfly Bead Club!
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Operation NICU Surprise - Tripler Army Medical Center (Hawaii)

5/20/2014

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Earlier in the month we asked everyone on our Facebook page to nominate a NICU and/or Hematology/Oncology unit or clinic that was there favorite to receive a special surprise from Gracie's Gowns!

We are choosing two NICUs and two Hematology/Oncology units from those nominated to receive a special box from us. The first NICU was chosen - and it is going to Tripler Army Medical Center's NICU in Honolulu, Hawaii! Jennifer nominated the hospital after her son Colton (who is also a Gracie's Gowns recipient) was born and cared for by the NICU staff. She was awesome enough to include a story of his stay and just how wonderful the staff was - and some sweet photos to share as well!

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Here is her precious Colton when he was born and cared for back in August of 2011. She includes the following about the hospital and staff at Tripler Army Medical Center's NICU.


"Our son was in the NICU for 12 days in August 2011. Our pregnancy with my son was very rough. Not many doctors believed he would make it or he wouldn't live long after brith. The NICU was just very amazing with him. They did everything they could to help him and it was so nice to finally have someone believe in him. They felt like family to us when we were there. And they just went above and beyond for my son. The NICU staff was just amazing! My son had an MRI when he was 1 1/2 months old and they let my son back into the NICU to be observed overnight bc they knew I was very uncomfortable with him going to the PICU with a bunch of sick kids. They were very understanding and cared very much for my son! And being a Military Hospital a lot of kids are in there with just one parent and no other family members to help them out during a stressful time in life and they could use a little a cute hospital gown!"

The photo above on the left is Colton in his gown from us back in September of last year (2013) and the photo on the right is him today at 2.5 years old! Look how much he has grown and how precious that smile is!! Way to go Colton - you've come so far and we have no doubt it was because of the fabulous start and care you have received since coming into this world! 
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So what's the surprise we're sending to Tripler Army Medical Center's NICU?

Well, we are sending them thirty NICU smocks to be distributed to the babies they care for! We know it doesn't remotely even make a dent into the 1,100 babies they serve annually, but at least there will be thirty styling babies this year!

These will be sent out this week to Hawaii and we hope they are received with much love and bring many smiles to the families that receive on of the gowns!

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Thank you Jennifer for nominating Triple Army Medical Center's NICU and sharing Colton's NICU story with us and allowing us to share it with all that may read our posting!

Thank you as well to Kim for sewing pretty much every single one of these thirty gowns going to the NICU (after we drew the name - we learned Kim's granddaughter was born at this hospital as well, but fortunately did not need to be admitted to the NICU). 

Stay tuned for our second NICU to be drawn once we have the items completed - but also for our Hematology and Oncology units/clinics to be chosen!

Lots of Gracie's Gowns cuteness to come!
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Week Three of Winners Spring Raffle

4/22/2014

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We are entering the last week and some of our spring raffle now!
It has been so much fun drawing winners for the prizes given in this raffle and I hope everyone is loving their new goodies. Here are the winners from last year.
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Our eighteen winner was Vicki Quick - her items were from Scentsy!

The items for this day in the raffle were sponsored by Karen Day Hill!

Karen's business website is:
http://karendayhill.scentsy.us

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Our nineteenth winner was Susan Casey-Ellis - her items were from The Pampered Chef!

The items for this day in the raffle were donated by Audra Smith - a Pampered Chef consultant that is close friends with a gown recipient's family.

Audra's business website is:
www.pamperedchef.biz/audra

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Our twenty-first winner was Irene Luck - her items were from The Pampered Chef!

The items for this day in the raffle were sponsored by Marie Snyder - a local Pampered Chef consultant to Gracie's Gowns.

You can find Marie's business page on Facebook at:
https://www.facebook.com/PampChefLady

And her business website is:
www.pamperedchef.biz/foodisfun



CONGRATULATIONS to EVERYONE!!!
And thank you to everyone who has helped with this raffle by purchasing a ticket, donating items, sharing our event and inviting your friends as well!
We still have some tickets for purchase for the last of our amazing raffle items! There's a deep covered baker from Pampered Chef, Scentsy bundles and more still to be given away!
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Precious Angel Bears - Eddie and Sofia

4/18/2014

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Remember back to last month when we made Lucy's bunny?

We decided this was a great idea and that we would continue to do such gowns for the children that gowns were requested for, but unfortunately passed away before their gown was able to be made and sent to them.

The first of the three I have been working on is going to the Livingston Family in memory and honor of their son Eddie who passed away from Neuroblastoma in 2013. 


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His nickname was "Superman" and his gown was actually requested by a mutual friend of the family and myself. Isn't he such a handsome little man? I bet he is an even more precious angel - flying around with his cape and all...having all kinds of fun like little boys should!

We purchased the superman fabric, but two days after having his fabric Eddie passed away, so the special bear below will be headed to his family in Florida.

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The second of the three is going to the Scott family in honor and memory of precious Sofia who passed away in March (on my little man's birthday actually) from complications with Spinal Muscular Atrophy Type I. 

Her gown was requested by a friend of the family, who also asked that we still send her gown to them as a keepsake. Once again, we decided to make an angel gown with a bear to be sent to them.

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And here is the beautiful princess Sofia.

Her angel bear and gown will be making it's way home this weekend as well. Her gown was completed (in her size), but wasn't able to be sent before we learned she had passed away.

So, we sized it down to fit the teddy bear, below is her angel bear. It didn't quite want to sit up on it's own - hence the kinda of squished look in the photo.

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Will be working on getting the third one done and posted - it is such an honor to make this tributes to the families we've received requests for and while we weren't able to provide their child with a gown to wear throughout their journey, at least we now have a way to honor their fight.

To the Livingston and Scott families - we are still praying for each of your every day...and while the loss of a child is beyond all words and the hurt will always still be there in many ways, we pray each day you find a little more peace, a little more comfort and a little more love from those surrounding you in prayer.

Much love and many blessings,
Gracie's Gowns
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First Week of Winners - Spring Raffle

4/8/2014

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Our first week of winners and a special drawing winner have already happened!! So exciting and the majority of these items have already been mailed out too - thanks to some extra running around we've had to do in our personal world and was able to swing by the post office on those trips too.
We're excited to start another week of winners - after I draw today's winner - we still have 22 awesome days of prizes left to give away and another special drawing prize if we can still 200 tickets in total (we're at 117 right now). Lots of great Pampered Chef and Scentsy items are being given away and you're not going to want to miss out on the upcoming prizes for sure!
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Our first winner was Debbie - her items were from The Pampered Chef!

The items for this day in the raffle were sponsored by Marie Snyder - a local Pampered Chef consultant to Gracie's Gowns.

You can find Marie's business page on Facebook at:
https://www.facebook.com/PampChefLady

And her business website is:
www.pamperedchef.biz/foodisfun

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Our third winner was Patricia - her items were from The Pampered Chef!

The items for this day in the raffle were donated by Audra Smith - a Pampered Chef consultant that is close friends with a gown recipient's family.

Audra's business website is:
www.pamperedchef.biz/audra

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Our fifth winner was Ellen - her items were from The Pampered Chef!

The items for this day in the raffle were sponsored by Marie Snyder - a local Pampered Chef consultant to Gracie's Gowns.

You can find Marie's business page on Facebook at:
https://www.facebook.com/PampChefLady

And her business website is:
www.pamperedchef.biz/foodisfun

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Our seventh winner was Becky - her items were from The Pampered Chef!

The items for this day in the raffle were donated by Audra Smith - a Pampered Chef consultant that is close friends with a gown recipient's family.

Audra's business website is:
www.pamperedchef.biz/audra

CONGRATULATIONS TO EVERYONE!!


To purchase your ticket(s) you can visit our website under the events tab - www.graciesgowns.org/events.html
and purchase them there using the Add to Cart button through PayPal.
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Lucy's Bunny for William

3/12/2014

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I know we posted about this on Facebook, but I just really felt like I wanted to write and post it on our blog as well - especially since we have followers here, that don't Facebook.

Every so often (and much more than I ever want to admit or think about), we have a little one that passes away before their gown is received. Sometimes even before we have started their gown request. While I know it is always a possibility, it is still the hardest part about operating Gracie's Gowns.

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Lucy is one of those precious little ones. I had just completed with sewing on her gown and the next day her mother Rinda messaged me through Facebook saying her precious little girl had passed away. She was born with hypoplastic left heart syndrome and the complications from her heart defect gave her a beautiful set of angel wings.

I asked her mother if she still wanted Lucy's gown as a keepsake and she said yes, but then I had another idea in my head and heart to make it a little more special - Lucy didn't just leave her parents behind, but also an older brother named William.

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It was agreed that my little idea was perfect for her brother William - he is three years old and is having a hard time understanding why he can't see his baby sister anymore...it was to put Lucy's gown on a special animal and send it to him. So whenever he misses Lucy, he can give this animal a hug and send a hug to her as well.

The search began for the right size animal and I found this fluffy bunny that her gown fit perfectly on.

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This precious bunny came from our local Build-A-Bear store in the Spotsylvania Towne Centre. I went there knowing their animals were a bit larger and in prayer I would find something perfect.


I got a huge surprise though while there - as the bunny was being stuffed by the manager, we were talking about what occasion it was for and I showed him Lucy's gown and how it was for her brother. He noticed the angel wings right off the bat and I told him she passed away at fifteen days old from a severe congenital heart defect. The manager then took the tag off of the bunny and donated it to her brother William.

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I even showed him the little heart snaps that we used on the back of the gown, while we were putting it together.

The manager refused and I mean refused to let me even remotely pay a dime for the bunny - and I couldn't have been more blessed to see this idea become a reality for William and Lucy's parents.

This precious bunny is making it's way to their home in Australia as I am writing this posting and I know it will be received with many, many hugs. 

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There she is - Lucy's Bunny.


As hard as it is to lose one of our little ones, period, it is so hard for me for them to pass away before we can get a gown to them. But now we have this amazing, heartfelt way to still provide a little something for their families to hold onto. It is a blessing to finally (after almost two years) have a way to remember these little ones as well and their brave fights, however long or short they may be. 
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Donation to the Little and Dependent

1/25/2014

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Eastern Tennessee Children's Hospital is one of the most amazing children's hospital in the country. Not only do they care for a variety of pediatric illnesses and needs, but they have a super special NICU. 

The reason their NICU is so special is because they are one of the hospitals that treat the highest number of drug-dependent newborns in the United States. And we aren't talking street or illegal drugs...these are prescription pain medications and most obtained under normal circumstance.

These babies are weaned off prescription medication, by being given doses of morphine until they are able to tolerate being completely off any kind of opiate. This process can take days and week to accomplish. The unit can hold 49 infants and over half of them are born with neonate abstinence syndrome (drug-dependent), these babies have to be watched around the clock for seizures and even worse, in case they stop breathing.

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When I was in college, this was a topic I was starting to write a research paper on...it is a personal subject as my youngest was born drug-dependent and not because I misused my pain medication, but because I was given excessive amounts of pain medication between all of our admission during pregnancy for pre-term labor and for the amount of pain I was in throughout the entire pregnancy because of the amount of scar tissue I had and two pregnancies very close together and severe anemia issues as well. 

Only problem was, when she was born, we didn't know what was the cause of all the problems we had in the first two months of her life, until I happened to read a forum on drug-dependent babies and all the pieces fell into place. It was scary.

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So when Ellen from Socks 4 Surgery posted the articles published in 2013 about Eastern Tennessee Children's Hospital and what their NICU was doing - we decided that some extra comfort needed to be sent to these precious little ones as well.

Ellen sent out socks and hair bows and in her awesomeness asked if we had any gowns that we could send their way as well. I had to wait until I got back to the house and went through what we already had sewn NICU Smock wise and put together a box that we will be sending out the the hospital this Monday.

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So in total we have twenty-eight gowns headed to the hospital's volunteer services and some of our brochures to be used throughout the hospital for other children that may want a gown of their own as well.

We will keep praying for the hospital's staff and volunteers that are working with and caring for these precious babies and their families. We pray for the babies and their families as well through this rocky start to their journey and lives. 

We hope these gowns find each little doing the best they can and provide them with a little extra comfort.

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Clicking on the picture above will take you to a brochure (PDF Format) the hospital has created on Drug Use during Pregnancy and about Neonatal Abstinence Syndrome.
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CureFest 2013 

11/2/2013

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On September 1st, 2013 - Gracie's Gowns participated in CureFest for Childhood Cancer on the National Mall in Washington D.C. with 52 other organizations. We banded together for the day and there on out to advocate for pediatric cancer awareness, research, treatments and cures.
The event was co-hosted by Journey 4 A Cure and theTruth365 - both have done amazing things for children battling and surviving cancer. They not only bring awareness and research funding, but they get to you on a personal level - they tell each child's story, I'm sorry I need to rephrase that - they have each child tell THEIR story, each family share their experience in ALL aspects of the cancer world, the successes and even more heartbreaking, the losses. They show the real statistics of the pediatric cancer world and if you read each of them...it will change your life forever.
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At CureFest they had several speakers - parents, siblings, organization representatives...but the ones that shook you the most were the children.

Gabriella was one of those children - her speech had you laughing at one minutes, inspired throughout and in tears over the reality of what cancer does to children. Her speech was beyond motivational - there was no way you could hear her give "the cold hard facts" without making it your mission to do something to make a difference. 

I am posting her here, because this past weekend, Gabriella lost her battle very suddenly to a brain tumor. She was diagnosed in November of 2012 and passed away October 26, 2013. She made the last year of her life a mission, a legacy even...to show Virginia and the world they HAVE to do something to improve the lives of children battling cancer, to "give them their childhood" to not only treat, but cure the cancers and in a way that doesn't rob them of the life they deserve. She raised funding for the Make-A-Wish foundation after she was granted the wish to go to Paris, France with her family - she knew that other children deserved the chance to have that one lasting memory with their families. She helped raise over $250,000 for Make-A-Wish in just one campaign. 

Gabriella - know that you are deeply missed, but never forgotten! You have impacted and changed so many lives that can only be counted by God. Your parents will continue your work, those that are touched by you have been inspired to do the same as well. We may never do it as great as you did, but we will always try our hardest.

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Throughout the day we gave away 50 goodie bags to those that stopped by our table - here is a collage of the items that were included. Knowing we were headed to this event, simply because it was local enough to us to do so, I invited other organizations and businesses to contribute to our bags and help spread the word about who they are and what they do.

Healing Helpers participated with their Heart Key Chains that they also embroidered a Yellow Ribbon on.

Socks4Surgery participated with their information and magnets.

Pink Door Fabrics sent some quilting bundles of fabric - Chelsea and Charlie have been amazing with donating and letting me purchase fabric at a lesser cost for gowns.

Bee Brave sent their mini stress relievers - which if you remember from our blog on them, they were made from scraps of fabric from our gowns.

We of course included our bracelets and information.

Hollie is a Thirty-One Consultant and contributed her information and nail files from Thirty-One Gifts, she also contributed our raffle item for the day too!

The Hensons contributed their information about Zeal for Life (will update this with their website, once I have it again, it is not with me right now).

Tricia contributed her Pediatric Cancer Awareness bows! One of which was given to Gabriella when we met her. She wanted it so bad and decided it looked great on her dress for the day!

THANK YOU to everyone who contributed to our bags! I know each item was well received!

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One of the best moments was meeting The Beltran family! We had been working on these freckles for his siblings and when I found out that they were going to be at CureFest, I just knew I had to get them done. 

Dominic was a local little guy that passed away from cancer - he loved superman so the fabric was made with superman and each one had a different color for the eyes, arms, legs and stomach and then we embroidered his name in gold.

This is the page they created for Dominic on Facebook and they are continuing their efforts for pediatric cancer research, awareness and advocacy!

https://www.facebook.com/Staystrong4dom

Here are the rest of our photos from CureFest for those who want to see some of them. I hope you enjoy them and check out all the amazing pages and organizations we've posted on the blog.
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Give - Even if it is Just a Little

9/11/2013

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As I had posted on our Facebook page - over the weekend the church our family first attended in the area, but also where I still attend and lead worship at the Lakeside Service on Sunday mornings celebrated their 200th Anniversary!
Elk Creek Baptist Church was founded in 1813 on a little hill in Mineral, Virginia - it has survived some of the craziest times in the history of the United States...though I think the next 200 years may be even harder.


This little church has withstood the Civil War, multicultural differences, awful weather, next to no attendance at times, and even more recently a massive earthquake that most of us wondered if the church had even survived. It did have structural damage - but amazingly survived compared to most of the buildings in the area from that time. God was protecting his house. 


Here is a picture I took last year from Easter - at the lakeside service. Can't you just feel the serenity, the presence of the Holy Spirit right there? I love singing...even more so, love singing praises and worshiping at the lakeside service. It is more than just going to church...it is being IN church...where God is and feeling his creation while there!
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Okay now back to the 200th anniversary service and why I am even blogging today about it. There was a guest preacher and I wish I could remember his name right now, but I cannot. His sermon was about when Jesus fed the crowd of 5,000 men with just a 5 loaves of bread and 2 fish...not to mention the leftovers afterwards (also not counting women and children that were there as well).


The sermon lined out what Jesus did time and time again - he took the bread, he broke the bread, he blessed the bread and he gave it to the people. It didn't matter the amount of bread - it didn't matter at all...he made it work and work to the glory of the kingdom. 
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As a little girl - I remember wishing on dandelions. I love this image...I can see myself here, I can see my oldest here. I can remember all the things I would wish, hope and pray for through the dandelions. It was my prayer many of times for the safety of my father while deployed in the Navy, but even more so it was my prayer to one day make a difference in the lives of many.


As I went to start making hospital gowns for children - I never imagined that Gracie's Gowns would become just that, but that it would become what it is today. It has been an amazing journey, but I have also realized it is more than just me...it is a ministry to the kingdom of God and one that he has not only inspired me to use my time and talents for, but one he is blessing and giving to each of you.


The past month and a half have been hard - I won't lie. With restructuring, rewriting and once again being the only person working on gowns there have been so many times I have wanted to give up. And then I heard this sermon on Sunday.


I don't have much to give - I have a wall in my kitchen, the limited time during the day and the late hours at night, I have my own intermediate sewing abilities and limited funds...but I have the passion and the heart for children who are hurting, children who are in need of comfort and a smile. That sermon was meant just for me.


I have given to God what I do have, he has taken it - the past month and a half he has allowed it to be broken, not as punishment, but as a humbling experience and reminder that it all about the children, His children, and to remind them they are loved beyond all measure. He has blessed Gracie's Gowns with your constant support, new families we've met, new experience and even great opportunities in the future. But most of all he has given this ministry to each of the 840 families we've reached individually, not including their friends, families and those who have just happened to find us.


He has turned a home-based, one-person trying to make a difference into something so much greater and I cannot even begin to thank him enough for all of it. 


So remember - it may be a lot that you have to offer, but if God has a part in whatever it is...he will make it work. It won't be easy, there will be bumps in the road, but at the end of the day, it will be worth it and your passion and efforts will be multiplied to bless others.




Jessica
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Busy Buddy by Bee Brave

8/18/2013

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This amazing tray with a removable pillow that also becomes an amazing storage keeper is called a Busy Buddy - the amazing mother, daughter team behind it is called Bee Brave!

Our son David, was a recipient of a Busy Buddy - he is autistic (you can read back through the blogs and find his full story) and we spend two hours in the car every trip to therapy, every appointment, every specialist and every testing...which this summer was three days a week...for him, it is boring and frankly he hates it!

I cannot tell you how much he LOVES this - he can use it at home on his lap to color (we don't have much table space, and he can take it away from the girls), he uses it in the car, he can hide his most treasured possessions inside the pouch for the pillow (it has a zipper)...and well it worked great for mommy when I was laid up in bed and I was able to write out the new requests for gowns even.


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David is pretty picky about what he likes - what child isn't right?! I had just made him a special little bean bag seat/ottoman thing...lol. And this was the fabric he picked out for it. The amazing part of his Busy Buddy, was I was able to send in this fabric and her mother made the pillow with it! David was so excited to see his "moo cows," "piggie" and tractor on the fabric.


Melissa went one step farther and matched the painting on the tray to the fabric as well! Once again - he was in HEAVEN! It was so great to see his face light up when it arrived in the mail and it was perfect timing as we had therapy the next day! But he wanted to take it outside to play with his trucks in the sandbox instead...lol.

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So we compromised - he is David with his Busy Buddy!

He was allowed to take it outside with him, but it had to stay with mommy, I wasn't about to have sand start coming out the zipper pocket...lol.



He doesn't always smile, but he wanted to say "mooooo" as his picture was being taken. The boy loves cows, what can I say? He wants to be a cowboy when he grows up.


When I sent in David's fabric for his Busy Buddy we also went a couple steps farther and created a wonderful bond and work relationship on the Gracie's Gowns end with Bee Brave.

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We sent all this amazing fabric over to Bee Brave to help make the pillows for other children, teens and adults that end up being on their sponsorship list!


Of course, it is mostly all scraps from gowns that have been made for children by Gracie's Gowns. Some of our gowns we have lots left over, and this is the case with these fabrics, but we also sent lots of smaller pieces to use as well for their mini stress relievers!


We filled up a diaper box of fabric and mailed it out to Melissa and her mom and something even more amazing is stemming from this too!

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We are participating in CureFest 2013 in Washington D.C. - it is an event sponsored by The Truth 365 to bring awareness and support for Pediatric Cancer.


The event is on September 1st, 2013 and all of the participating organizations, work with children who have cancer, fund pediatric cancer research, promote awareness, etc.


Bee Brave - is sending us 50 mini stress relievers for our goodie bags to distribute throughout the time of the event! We wanted to help promote other organizations that are small like us, but work with children who have cancer, and just chronically ill children as well and let them not only put informational materials in our bags, but include a little item too!


Melissa sent me this picture of some of the ones heading our way here soon! All I can think of when I see this is the precious kiddos that received gowns from the same fabrics and it makes me tear up, knowing they have inspired something so amazing in my own heart and really and truly are the heartbeat that keeps Gracie's Gowns running!

If your organization isn't attending CureFest and would like to include an item and informational materials in our goodie bags, we are putting together 50 bags. The items need to be at my house no later than the 29th of August so I can get them put in the bags.


Direct sales companies are allowed to include an item, but I am only taking one representative per company - and you must include a sample item with your information. Please contact me BEFORE sending anything, just to make sure I don't have another representative already - and that I need to keep my eye out for a package - same with any organization.
To learn more about Bee Brave you can visit their 
Facebook Page at (stop by and send them some love, Gracie's Gowns style of course):
https://www.facebook.com/beebrave2013



And their website is:
http://www.beebrave.org

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