William, or Liam as he is more popularly called is a handsome two year old boy that has been diagnosed with Mucopolysaccharidosis or abbreviated as MPS.

It is a rare disease and one that makes every day a battle, every day unknown and every day full of adventures.

Liam also suffers from conditions related to the MPS. These include: food allergies, an arachnoid cyst in his Right Cerebellopontine Angle Cistern with enlarged space around it, Ataxia, Arthritis, Bilateral Dislocated Hips (with Defective ossification, dysplastic acetabella, & damage to his iliac wings bilaterally), Chronic Regression, finger clinidactyly bilaterally,  Developmental Delay, irregular Gait, Hypersensitivity, Hypotonia, Hearing Loss, Osteoponia, Plagiocephaly, Seizures and he is also nonverbal.

So much for such little ones to go through. Fortunately he has a great family and friend support to help get through each event and make every moment count. It has not been an easy road and there has been lots of obstacles to climb in his two years here on Earth. Liam has been poked and prodded his whole life trying to find answers and find out what's wrong; but he is blessed to only have had 1 surgery so far. He had emergency surgery to repair his inlingual and umbilical cord hernias at 4 months old. He was transported from one children's hospital to another that would be able to handle doing this emergency surgery while he was in ICU battling RSV. His surgery was only supposed to take 30-45 minutes but ended up taking almost 3 hours, as they had to fight to safe his left testicle due to all the fluid buildup cutting off the blood flow to it. Luckily it was saved and he was released after being in the hospital for a month.

In the future Liam will have to have hip surgery on both hips in a few weeks time and a total hip replacement if those surgeries don't fix his problems. There will be many more surgeries in the future, but Liam and his family are just taking them one at a time.

Liam's mom described their most frightening and most exciting moment in their journey with MPS so far like this:

There was more that Liam's mom went on to say about MPS - which I didn't know, but also a beautiful view of how all our special children, are still children...no matter what they are going through or up against, they still all just want to be the child they were meant to be.

To learn more about and help support Liam and his family you can visit their Facebook Page.
www.facebook.com/fightingforanswers

To help provide financial support to the family you can donate through their gofundme page below. The family is currently trying to move from Texas to Florida because their insurance doesn't cover out of state appointments, but also because the doctors that specialize in MPS are located in Florida.
http://www.gofundme.com/fightingforanswers

To Learn More About Mucopolysaccharidosis view this link:
http://www.mpssociety.org/