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Late Night Thoughts and Inspiration

8/2/2015

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The last few weeks I have been awake and taking care of essentially everything 15-20 hours out of each day. This is not a complaint, to be honest, I've been amazed that I can function like this given everything behind the scenes, however, it is in these late hours that I do start to feel stress in relation to getting the important aspects of Gracie's Gowns taken care of.

This is my job, this is my dream, this is the legacy that I will leave behind when my time is over on this earth, and I will continue to put forth every ounce of energy to make the bigger plans I have in store for Gracie's Gowns come true. However, despite all my valiant efforts to save the world one stitch at a time, it can be and sometimes is exhausting, overwhelming, and even in some aspects it can be frightening.

Those are the moments I look for inspiration to just keep swimming and to bring myself back to where it all began. Sounds simple, but even that can prove challenging. That being said, over the last month or so I have a constant reminder that has helped me to remember just how amazing this organization is and will continue to be, my roots in creating it, the reasons behind every stitch, and how far the organization has come since conception a little over three years ago.

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A little over a year ago I had a box of 4" x 4" fabric squares that had been cut from remnant pieces of gowns and from what I can remember now some of my personal projects as well, just taking up space, so to speak. It was always my intention to make them into scrap quilts and raffle or auction them off in order to help raise shipping funds and such.

I had posted to Facebook about this box of scrap pieces and Rosie was so excited to take them off my hands and make them into "something special." Little did I know that this something special would end up being for me. 

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When she first brought this scrap quilt over and I opened it up, I couldn't help but start crying. It is sentimental on so many levels. There are pieces from gowns from day one of me sewing them, gowns of children that have passed away, and so many pieces of gowns that I can pick out the name of who it was for, because I am just that kind of person that every child deserves a gown just as unique as they are. 

And then there are the random, I just thought they were pretty fabrics that I used to make items to sell at Graves Mountain over the last three years to raise money for Gracie's Gowns (like the macaroons one above). I originally had posted to our page that the quilt was going to be for raffle or auction, but the more I looked at it, the more I thought about it, the more I held it...I just couldn't let it go and in that moment, Rosie messaged me saying that the quilt was for me/Gracie's Gowns to keep as a reminder and keepsake of these children we make gowns for.

It is in my plans to have an office in the near-ish future, while I always say the sooner the better, we have some decisions to make and the office may have to be postponed just a wee bit, but I do know that when I have an office, there will be a reading corner for families and children to use while they are there. This will be going in that reading corner, so anyone who needs a hug, can snuggle up with it and feel connected and hugged by all the children who have gowns represented by this quilt. Right now, it sits on the back of my sewing chair...the best place for it to be, to continuously remind and inspire every stitch...and to keep me warm when this bedroom becomes way too cold. 

Thank you Rosie for blessing me with such a sweet keepsake...and thank you to all our families for blessing me with being a part of your child's medical journey, to inspire me to be a better person and to fight for not only what matters most, but what I believe in as well. 

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Operation NICU Surprise - Johns Hopkins Children's Center (Maryland)

7/11/2014

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Our second NICU we chose to receive a box of NICU Smocks was Johns Hopkins Children's Center NICU located in Baltimore, Maryland. They have a state of the art NICU that was built in 2012 and it includes 45 private NICU beds. They services neonates with all sorts of complex congenital birth defects and disorders in addition to the little ones just born too soon. The thing I love the most about their new NICU is that each room has the ability for a parent to stay in the hospital with their baby, something most NICUs don't have, well many intensive care units don't have that, even the ones for adults. You can learn more about the NICU and what they offer through their website at: http://www.hopkinschildrens.org/neonatology/

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Johns Hopkins Children Center's NICU was nominated by Adrianne in honor of her son Xavier who was cared for by the wonderful doctors and nurses in the NICU. Xavier was born with more complex issues than just premature delivery, but the doctors and nurses went the extra mile to care for him through it all. This was a few years before the new facility was built, but Adrianne was awesome in sharing with us some photos from and (and now). You can read their story below in her own words.

My son, Xavier (now 5), was born 4 weeks early due to low amniotic fluid. I had a normal pregnancy and didn't expect anything different despite his late prematurity. Little did my husband and I know that on Friday March 13, 2009 things were about to change dramatically. When Xavier was born (at 4lbs) there were immediate signs of distress...he had difficulty breathing as well showing signs of seizures. He also looked different than typical children. He was born at a hospital close to our home that had wonderful OB/GYN and infant care. But despite their best care we were told they were unable to provide enough support for Xavier in their NICU. We were told on his fourth day of life that he had to be transferred to Johns Hopkins in order to undergo further testing and access to doctors skilled in more complex cases. We were in shock to say the least. We were not expecting any of this and suddenly our lives were turned upside down. Getting to the NICU at Hopkins was a whirlwind of nurses, doctors, and tests. I have to admit I was bitter and just wanted to bring my son home and not have him poked and prodded. We were told that Xavier likely had a genetic syndrome and he was, in fact, experiencing seizures. He also had to learn to breathe and eat on his own. It was noted that he also had a number of congenital anomalies. Xavier spent a total of 32 days in the NICU and in that time my husband and I created relationships with doctors, nurses, and even other families that last until this day. They rallied in our highs and supported us in our lows. Xavier's nurses gloated at the fact that I was able to provide him solely with enough fresh breast milk and at the skill of his dad as he was the only one Xavier would drink from a bottle for. They called us immediately with good test results and sat with us to understand more difficult ones. In that time out dread and fear were able to be calmed by simply talking with the nurses about "normal" things. We joked, talked about the weather, and we brought them food (a fed nurse is a happy nurse lol). When the day came for X to come home our doctor met us in the hallway singing the Rocky anthem as we strolled X's stroller into the NICU. You never want to see your child go through such difficult things but I know our son was in the best hands. 2 years after his birth Xavier was finally diagnosed with a rare genetic syndrome called Schinzel-Giedion syndrome. He's one of approximately 12 kids worldwide. We would have never gotten this diagnosis had it not been for our geneticist and genetic counselor...providers who have been with us since the NICU. We have been with our different specialists through surgeries and hospitalizations. Each year we attend the NICU reunion to see the nurses and other babies who were with us from the beginning. Xavier has even attended daycare and now school with the little girl who was next to him in the NICU. We never expected to have a child with special needs but we are fortunate and forever thankful to the staff at the Johns Hopkins Children's Center NICU.
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Thank you so much Adrianne for nominating Johns Hopkins Children's Center and for sharing your story with us and our followers as well - the NICU Smocks have already made their way to Johns Hopkins Children's Center (they were mailed the first week of this month) and we hope they bring many smiles to the facility, but even more so to the families that receive one of them for their little one. Here are a few pictures of the gowns and because my oldest colored the box so pretty, she insisted I share a photo of that as well.
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When we have more sewn and ready, we will work on pulling some more NICU nominations and dispersing them to other hospital around the United States and the world. It is such a blessing to send these everywhere we can, but even more so to wrap the littlest miracles in something comfy of their own.

Have a beautiful weekend!
Gracie's Gowns
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Operation NICU Surprise - Tripler Army Medical Center (Hawaii)

5/20/2014

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Earlier in the month we asked everyone on our Facebook page to nominate a NICU and/or Hematology/Oncology unit or clinic that was there favorite to receive a special surprise from Gracie's Gowns!

We are choosing two NICUs and two Hematology/Oncology units from those nominated to receive a special box from us. The first NICU was chosen - and it is going to Tripler Army Medical Center's NICU in Honolulu, Hawaii! Jennifer nominated the hospital after her son Colton (who is also a Gracie's Gowns recipient) was born and cared for by the NICU staff. She was awesome enough to include a story of his stay and just how wonderful the staff was - and some sweet photos to share as well!

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Here is her precious Colton when he was born and cared for back in August of 2011. She includes the following about the hospital and staff at Tripler Army Medical Center's NICU.


"Our son was in the NICU for 12 days in August 2011. Our pregnancy with my son was very rough. Not many doctors believed he would make it or he wouldn't live long after brith. The NICU was just very amazing with him. They did everything they could to help him and it was so nice to finally have someone believe in him. They felt like family to us when we were there. And they just went above and beyond for my son. The NICU staff was just amazing! My son had an MRI when he was 1 1/2 months old and they let my son back into the NICU to be observed overnight bc they knew I was very uncomfortable with him going to the PICU with a bunch of sick kids. They were very understanding and cared very much for my son! And being a Military Hospital a lot of kids are in there with just one parent and no other family members to help them out during a stressful time in life and they could use a little a cute hospital gown!"

The photo above on the left is Colton in his gown from us back in September of last year (2013) and the photo on the right is him today at 2.5 years old! Look how much he has grown and how precious that smile is!! Way to go Colton - you've come so far and we have no doubt it was because of the fabulous start and care you have received since coming into this world! 
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So what's the surprise we're sending to Tripler Army Medical Center's NICU?

Well, we are sending them thirty NICU smocks to be distributed to the babies they care for! We know it doesn't remotely even make a dent into the 1,100 babies they serve annually, but at least there will be thirty styling babies this year!

These will be sent out this week to Hawaii and we hope they are received with much love and bring many smiles to the families that receive on of the gowns!

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Thank you Jennifer for nominating Triple Army Medical Center's NICU and sharing Colton's NICU story with us and allowing us to share it with all that may read our posting!

Thank you as well to Kim for sewing pretty much every single one of these thirty gowns going to the NICU (after we drew the name - we learned Kim's granddaughter was born at this hospital as well, but fortunately did not need to be admitted to the NICU). 

Stay tuned for our second NICU to be drawn once we have the items completed - but also for our Hematology and Oncology units/clinics to be chosen!

Lots of Gracie's Gowns cuteness to come!
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Precious Angel Bears - Eddie and Sofia

4/18/2014

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Remember back to last month when we made Lucy's bunny?

We decided this was a great idea and that we would continue to do such gowns for the children that gowns were requested for, but unfortunately passed away before their gown was able to be made and sent to them.

The first of the three I have been working on is going to the Livingston Family in memory and honor of their son Eddie who passed away from Neuroblastoma in 2013. 


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His nickname was "Superman" and his gown was actually requested by a mutual friend of the family and myself. Isn't he such a handsome little man? I bet he is an even more precious angel - flying around with his cape and all...having all kinds of fun like little boys should!

We purchased the superman fabric, but two days after having his fabric Eddie passed away, so the special bear below will be headed to his family in Florida.

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The second of the three is going to the Scott family in honor and memory of precious Sofia who passed away in March (on my little man's birthday actually) from complications with Spinal Muscular Atrophy Type I. 

Her gown was requested by a friend of the family, who also asked that we still send her gown to them as a keepsake. Once again, we decided to make an angel gown with a bear to be sent to them.

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And here is the beautiful princess Sofia.

Her angel bear and gown will be making it's way home this weekend as well. Her gown was completed (in her size), but wasn't able to be sent before we learned she had passed away.

So, we sized it down to fit the teddy bear, below is her angel bear. It didn't quite want to sit up on it's own - hence the kinda of squished look in the photo.

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Will be working on getting the third one done and posted - it is such an honor to make this tributes to the families we've received requests for and while we weren't able to provide their child with a gown to wear throughout their journey, at least we now have a way to honor their fight.

To the Livingston and Scott families - we are still praying for each of your every day...and while the loss of a child is beyond all words and the hurt will always still be there in many ways, we pray each day you find a little more peace, a little more comfort and a little more love from those surrounding you in prayer.

Much love and many blessings,
Gracie's Gowns
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A Little Break in Routine

4/15/2014

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Okay - so old picture, but had to use something with the sewing machine. I love sewing these hospital gowns, I love sewing them for your little ones and seeing their smiling faces and knowing how it can literally change a hospital experience from bad to at least tolerable. 

Sometimes though, I have to break the routine of making gowns and work on other projects, just to keep from crying over how many precious little ones are in need of such an item. It breaks my heart in so many pieces at times, that I have to sit back and remember how much of a blessing each child is, how they have changed the lives of those around them...how they fight, just to make it through another day and while yes, the odds are usually stacked against them, they inspire others to do such amazing things - like Gracie's Gowns and so many other organizations!

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One of the items that have been done and still being worked on were these squishy little monsters! We sold them over the course of a couple days in order to raise shipping funds for gowns.

I am happy to say they are almost all done and out in the mail (still have maybe 7 more in total to make I believe). Here is some of the ones that went out last week, as I didn't get pictures of the previous ones made to post. My apologies on that...they are too cute not to picture and post.

These guys come from leftover minky fabric that I have from making millions of blankets over the last few years I have been making for friends and family.

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One of the other items that get worked on in those little breaks are some bags for Beads of Courage - I love making these little bags from leftover pieces from gowns!

They are easy enough to make and still give that feeling of inspiration and fulfillment I suppose in knowing the fabric we use won't go to waste and can brighten the days of so many other children too.

This year we have 17 bags made so far to donate to Beads of Courage and will probably have close to 50 by the time the donation is ready to be made. We are hoping to be able to donate them to our local hospital with a Beads of Courage program. 

Lastly, whenever I really want to venture out into my sewing fun - I go back to making little items from leftover pieces of fabric and working through my own personal fabric stash and creating other items that we will be taking with us for our craft show in October - last year we raised $900 for Gracie's Gowns with items made from leftover pieces and whatever fabric I had on hand - this year we're hoping to meet and exceed that amount...especially with the Christmas Box Program coming up at that time of the year as well. Right now we've loaded the items into an etsy store (which will be put in vacation the Thursday before the show) to try and sell some of the items throughout the year with all the money being put into our shipping expenses. So here is the etsy mini with links in case you want to browse it!
With all that fun being said and shown - no worries, gowns are still being made, still being sent out and Gracie's Gowns is rolling right along like we always do. Sometimes just a little slower than normal, because we are in the process of moving and my health has gotten a little "interesting" for lack of a better word, but we are still upholding and maintaining our mission to provide every child we can a special hospital gown of their own to wear while in treatments, surgeries and hospital stays!

Much Love and Many Blessings,
Jessica
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Half-Way Through Spring Raffle

4/15/2014

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We're at the half-way point now!!
Fifteen days of winners and fifteen more days to go - we still have 78 tickets that we'd love to sell before the end of the raffle to meet our goal for sales. The proceeds from the ticket sales cover the cost of the items Gracie's Gowns had to purchase for the raffle, shipping costs of the items to winners, but also benefit our Christmas Box Program that we've been accepting items for and will continue through early December. The majority of the funds raised from the tickets sales will be put towards shipping of those Christmas boxes in mid December to our families that sign up for the program in late October.

So without further delay - here are some more of our winners in case you missed it on Facebook!
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Our ninth winner was Charlene - her items were from The Pampered Chef!

The items for this day in the raffle were sponsored by Marie Snyder - a local Pampered Chef consultant to Gracie's Gowns.

You can find Marie's business page on Facebook at:
https://www.facebook.com/PampChefLady

And her business website is:
www.pamperedchef.biz/foodisfun

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Our thirteenth winner was Marla - her items were from The Pampered Chef!

The items for this day in the raffle were sponsored by Marie Snyder - a local Pampered Chef consultant to Gracie's Gowns.

You can find Marie's business page on Facebook at:
https://www.facebook.com/PampChefLady

And her business website is:
www.pamperedchef.biz/foodisfun

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Our fifteenth winner was Kim - her items were from The Pampered Chef!

The items for this day in the raffle were sponsored by Dawn Truex - a friend and Pampered Chef consultant to one of the families we have made a gown for.

And her business website is:
www.pamperedchef.biz/mychefdawn



And that wraps up the second week of our winners and brings us half-way through the raffle as well!

Congratulations to everyone who has won and item so far and please don't forget to share, invite, and purchase a ticket for yourself!! We'd love to reach our overall goal for ticket sales, but even more so make sure we have funds available for shipping out our Christmas boxes!

To purchase a ticket please visit our events page at:
www.graciesgowns.org/events.html
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A Time to Remember - Two Years

3/25/2014

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This past weekend we celebrated our two year anniversary in making hospital gowns for children across the United States and around the globe. What a great accomplishment, what an amazing experience, what a blessing for my own life the past two years have been (even with the crazy times)...but we also took the time this year to celebrate the lives of the children we have made gowns for and remember those that have passed away over the past two years.
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Each child we made a gown for that traded in their super hero capes for angel wings had a lantern with their name, date of birth, date the became an angel, diagnosis and anything else the family, us, or the person who purchased the lantern in their memory wanted to say on it.

This year we released 45 lanterns - there were a few duplicates from where Gracie's Gowns had a lantern for the child and someone else wanted to purchase a lantern in memory as well, but overall there was one lantern per child. We had a few lanterns as well for children that we did not make a gown for, but were warriors as well - and we gladly added remembering their courage, strength and smiles to our ceremony.
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Due to some weather related issues, we started later, but lanterns went in the water around 8:00 p.m. and the final one went out about 10:00 p.m. It was a very cold night, but watching the lanterns float in the water, seeing their reflections and just how they illuminated the water was breath-taking. Even more so, it was very, very emotional for me. Too have a visual of the children that lose their lives battling illness was heart-breaking...to know that this is only the children our organization has personally worked with in two years was devastating. There are so many more children who pass away each day, week, month and year that if we lit a lantern for each of them - we'd have to worry about them catching themselves on fire...there wouldn't be enough water for them all to float.

Watching the candles go out was probably the most emotional part of the whole night.
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The lanterns - if the wind didn't blow them out - started to sink as they were wet. They are biodegradable, which is the point for them to get wet and sink/fall apart/etc. But as they did...you would see this light, barely above the water...like it was holding on unto the last second. Fighting until the very end to stay shining. They flickered, almost went out, flickered some more, got brighter and held on...and then once the water came closer, the flame disappeared without any warning. Just like our little warriors.

They fight until the very end, giving it 100% and then some - they have so many close calls and yet still manage to pull through and almost make a complete turn around and then...in a blink of an eye, they are gone.
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Here is all of the lanterns we released out in the water - a beautiful tribute and celebration of their life.

Over the next few months, I will be creating an angels/in memory of page here on our website. It is my hope to get each child that we know has become an angel and learn about the ones we do not already know, on that page with their parents permission and help.

This will become an annual event for Gracie's Gowns - and for those that may not be able to attend at night, it is in my plans to do a balloon release during the day and make that a family event as well.

To view all the photos and lanterns from the event - you can visit this link below:

Gracie's Gowns Two Year Anniversary Lantern Release
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Tickets on Sale - Spring Raffle - Just for Mom

3/19/2014

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Gracie's Gowns is hosting a combined Pampered Chef and Scentsy raffle fundraiser just in time for Mother's Day!

We started selling tickets in February and will continue to have them on sale through April 30th, 2014. Tickets are $5.00/each.

Payments can be made by cash, check or PayPal - we will also have an "Add to Cart" button on our events page.



You can mail payments to the address below - please make any checks out to Gracie's Gowns, Inc :
Gracie's Gowns 
c/o: Jessica Kidd 
159 Ordinary Road
Mineral, VA 23117

They are two part raffle tickets, we will be keeping the part that has your name, address and phone number in order to contact you should your name be drawn as a winner during the raffle that will start on April 1st. The second section also has the same ticket number and that will be mailed to you once your payment has been received. 

Each day in April, we will be drawing a winner for one of our Pampered Chef or Scentsy prizes. They will alternate each day between the two companies. All prizes will be valued at $30.00 or more!! We will post the winners each day to Facebook and to our blog with a picture of the item won and the number drawn. Numbers will be drawn using random.org starting with the number 1 and ending with the total amount of tickets sold.

Your ticket can win more than once, but to have the best shot at winning an item, multiple tickets are encouraged.

Prizes will be mailed out weekly on Mondays - tracking numbers will be available as well once they are mailed. 

So make sure to share with your friends, family and everyone you know who loves Pampered Chef and Scentsy to help support Gracie's Gowns - all funds raised (after the purchase of the raffle items and shipping costs) will be put specifically towards our Christmas Box Program for this year


Here are some of the items we currently have in our raffle prizes!

We still have a few days left for any Scentsy Independent Consultant that would like to contribute towards our raffle prizes! All of our Pampered Chef days have been covered, but we have six Scentsy days that we need covered with item(s) valued at $30.00 or more. They can be bundled together to create the $30.00 value and we will be advertising your Facebook page and/or website each day that the item(s) you donate are given away.

Our Facebook event for the raffle is here - we will be posting winners every day to the event, as well as, our Facebook page itself:
https://www.facebook.com/events/631836276853318/


We have 60 tickets sold so far, we'd love to sell many more, so please share this with your family and friends so we can make this fundraiser really successful! Our biggest expense for the Christmas Box Project is going to be shipping, so the better start we can get on collecting the funds we will need helps us greatly!
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Lucy's Bunny for William

3/12/2014

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I know we posted about this on Facebook, but I just really felt like I wanted to write and post it on our blog as well - especially since we have followers here, that don't Facebook.

Every so often (and much more than I ever want to admit or think about), we have a little one that passes away before their gown is received. Sometimes even before we have started their gown request. While I know it is always a possibility, it is still the hardest part about operating Gracie's Gowns.

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Lucy is one of those precious little ones. I had just completed with sewing on her gown and the next day her mother Rinda messaged me through Facebook saying her precious little girl had passed away. She was born with hypoplastic left heart syndrome and the complications from her heart defect gave her a beautiful set of angel wings.

I asked her mother if she still wanted Lucy's gown as a keepsake and she said yes, but then I had another idea in my head and heart to make it a little more special - Lucy didn't just leave her parents behind, but also an older brother named William.

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It was agreed that my little idea was perfect for her brother William - he is three years old and is having a hard time understanding why he can't see his baby sister anymore...it was to put Lucy's gown on a special animal and send it to him. So whenever he misses Lucy, he can give this animal a hug and send a hug to her as well.

The search began for the right size animal and I found this fluffy bunny that her gown fit perfectly on.

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This precious bunny came from our local Build-A-Bear store in the Spotsylvania Towne Centre. I went there knowing their animals were a bit larger and in prayer I would find something perfect.


I got a huge surprise though while there - as the bunny was being stuffed by the manager, we were talking about what occasion it was for and I showed him Lucy's gown and how it was for her brother. He noticed the angel wings right off the bat and I told him she passed away at fifteen days old from a severe congenital heart defect. The manager then took the tag off of the bunny and donated it to her brother William.

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I even showed him the little heart snaps that we used on the back of the gown, while we were putting it together.

The manager refused and I mean refused to let me even remotely pay a dime for the bunny - and I couldn't have been more blessed to see this idea become a reality for William and Lucy's parents.

This precious bunny is making it's way to their home in Australia as I am writing this posting and I know it will be received with many, many hugs. 

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There she is - Lucy's Bunny.


As hard as it is to lose one of our little ones, period, it is so hard for me for them to pass away before we can get a gown to them. But now we have this amazing, heartfelt way to still provide a little something for their families to hold onto. It is a blessing to finally (after almost two years) have a way to remember these little ones as well and their brave fights, however long or short they may be. 
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Lia Sophia Jewelry Raffle Ends - Giveaway Posted

3/12/2014

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Our Lia Sophia Jewelry Raffle ended the last day of February - can you believe we're already near the middle of March this year?!
I feel like this year has just flown by and I can't even remember what has happened. Maybe that isn't such a bad thing some days?

Here are the last of the winners from the raffle and something special to share as well!
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Ana has decided to give her item away to the mother of one of the children we have made a gown for. She lives in Spain and did not want Gracie's Gowns to pay the extra shipping costs to mail her the bracelet that she won above and would like to give it to someone else.
So we created a rafflecopter giveaway where any of our families can enter to win the beautiful bracelet above! It ends in 4 days and a winner will be chosen and posted to our Facebook page.
a Rafflecopter giveaway
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